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Assessing Value: Promise & Pitfalls

September 29, 2016 I Washington, DC 20001

The National Pharmaceutical Council (NPC) will bring together health care stakeholders on September 29 for a conference, Assessing Value: Promise & Pitfalls, to examine one of the most controversial issues in health care today: how to measure the value of a medical treatment and its impact on patient care. An overview, the full agenda, details on loding & travel, as well as conference co-sponsors is available below. 

In-person attendance is at capacity. To watch via Livestream, please click on the REGISTER NOW button in the upper right corner. If you have already registered for the event, you should have received an email with the online broadcast information

NPC has consulted with the House and Senate Ethics Committees regarding this event, which is structured as a “widely-attended event” in compliance with House and Senate gift rules. 

You also may follow the event on Twitter using #npcvalueconf and NPC at @npcnow.

The Liaison Capitol Hill
415 New Jersey Ave., NW
Metropolitan Ballroom (Lobby Level)
Washington, DC 20001

Value assessment frameworks are a new and evolving field, and they have the potential to have a tremendous impact on patient treatment decisions, as well as on coverage and reimbursement decisions. These frameworks emerged in the United States in response to multiple factors, including an increased focus on patient-centered care, alternative payment models intended to incentivize health care value, and public attention on new high-priced therapies.

While the current value assessment frameworks have much to teach us, initial comparisons of these frameworks highlight the important differences and analytic challenges that still remain. Continued improvements are necessary to address the different perspectives inherent in assessing value.

During the conference, we will share research that evaluates how existing frameworks align with NPC’s Guiding Practices for Patient-Centered Value Assessment as well as the Current Landscape: Value Assessment Frameworks, and explore the variable outputs from multiple myeloma treatment assessments conducted using four different frameworks. A broad range of stakeholders will share their perspectives on the research, uncovering the lessons learned to date and how best to advance the field of value assessment.

8:30 am
Continental Breakfast and Registration Open

9:00 am
Welcome and Opening Comments

  • Dan Leonard, MA, President, National Pharmaceutical Council (NPC) (@npcnow, @naptwndan)

9:15 am
Framing the Discussion: Why Assessing Value Is Important & Why It’s Important to Do It Right

9:45 am
Presentation of Research: Moving Value Frameworks from Fledgling to Functional 

10:15 am

10:30 am
Panel Discussion: Moving Value Frameworks from Fledgling to Functional

  • Moderator:Cliff Goodman, PhD, Senior Vice President and Director, Center for Comparative Effectiveness Research, Lewin Group (@TheLewinGroup)
    PDF iconCase_Study_MultipleMyeloma.pdf

  • Peter J. Neumann, ScD, Director, Center for the Evaluation of Value and Risk in Health, Institute for Clinical Research and Health Policy Studies, Tufts Medical Center; Professor of Medicine, Tufts University School of Medicine (@Tufts_ICRHPS, @PeterNeumann11)

  • Josh Ofman, MD, MSHS, Senior Vice President, Global Value, Access & Policy, Amgen (@Amgen)

  • Eleanor M. Perfetto, PhD, MD, Senior Vice President, Strategic Initiatives, National Health Council (@NHCouncil)

  • Michael Sherman, MD, MBA, MS, Senior Vice President and Chief Medical Officer, Harvard Pilgrim Health Care (@HarvardPilgrim)

11:45 am

12:30 pm
Presentation of Research: Why Four Frameworks (Should) Arrive at Different Conclusions: A Case Study of Multiple Myeloma Reviews

  • Cliff Goodman, PhD, Senior Vice President and Director, Center for Comparative Effectiveness Research, Lewin Group (@TheLewinGroup)

1:00 pm

1:10 pm
Framework Developers Panel Discussion: Why Four Frameworks (Should) Arrive at Different Conclusions: A Case Study of Multiple Myeloma Reviews

  • Moderator:Cliff Goodman, PhD, Senior Vice President and Director, Center for Comparative Effectiveness Research, Lewin Group (@TheLewinGroup)

  • Robert (Bob) W. Carlson, MD, Chief Executive Officer, National Comprehensive Cancer Network (@NCCNnews)

  • Anna Kaltenboeck, Program Director and Senior Health Economist, Center of Health Policy Outcomes, Memorial Sloan Kettering Cancer Center (@sloan_kettering)

  • Steven (Steve) D. Pearson, MD, MSc, Founder and President, Institute for Clinical and Economic Review (@icer_review)

  • Lowell E. Schnipper, MD, Theodore and Evelyn Berenson Professor of Medicine, Harvard Medical School and Clinical Director, Cancer Center, Chief, Hematology-Oncology Division, Beth Israel Deaconess Medical Center (@harvardmed, @bidmcnews)

2:20 pm

2:30 pm
Stakeholders Panel Discussion: Why Four Frameworks (Should) Arrive at Different Conclusions: A Case Study of Multiple Myeloma Reviews

  • Moderator:Robert (Bobby) W. Dubois, MD, PhD, Executive Vice President & Chief Science Officer, NPC (@npcnow, @robertwdubois)

  • Roy Beveridge, MD, Chief Medical Officer, Humana (@Humana)

  • Gwen Darien, Executive Vice President for Patient Advocacy, National Patient Advocate Foundation (@NPAF_tweets, @GDarienCRmag)

  • Shelley Fuld Nasso, MPP, Chief Executive Officer, National Coalition for Cancer Survivorship (@sfuldnasso, @canceradvocacy)

  • Stephen J. Noga, MD, PhD, Senior Medical Director for Global Medical Affairs, Takeda Oncology (@takedaoncology)

 3:40 pm
Closing Remarks

4:00 pm


Please note: NPC does not have a designated room block for the conference; individuals are asked to make their own accommodations.

A list of hotels within a 5-10 minute drive of the conference site is provided below. 

Hyatt Regency Washington on Capitol Hill
400 New Jersey Ave., NW, Washington, DC 20001
Tel: +1-202-737-1234

Hotel George, A Kimpton Hotel
15 E Street, NW, Washington, DC 20001
Tel: +1-202-347-4200; Toll Free: +1-800-546-7866

Grand Hyatt
1000 H Street, NW, Washington, DC 20001
Tel: +1-202-582-1234; Toll Free: +1-888-591-1234

Renaissance Washington-DC Downtown
999 Ninth Street, NW, Washington, DC 20001
Tel: +1-202-898-9000; Toll Free: +1-888 236 2427

Hotel Monaco, A Kimpton Hotel
700 F Street, NW, Washington, DC 20004
Tel: +1-202-628-7177; Toll Free: +1-800-649-1202

JW Marriott
1331 Pennsylvania Avenue NW, Washington, DC, 20004
Tel: +1-202-393-2000; 1-800-393-2503

The Mayflower Hotel, Autograph Collection
1127 Connecticut Ave., NW, Washington, DC 20036
Tel: +1-202-347-3000; Toll Free: +1-800-228-7697

Washington Marriott at Metro Center
775 12th Street, NWm Washington, DC 20005
Tel: +1-202-737-2200; Toll Free: 1-800-393-2150

Hamilton, A Crowne Plaza Hotel
1001 14th Street, NW, Washington, DC 20005
Tel: +1-202-682-2011

Hilton Garden Inn
815 14th Street, NW, Washington, DC 20005
Tel: +1-202-783-7800; Toll Free: 1-800-445-8667

Washington, DC airports (with approximate travel times to conference site, pending traffic):

  • Ronald Reagan Washington National Airport (DCA) - approximately 20 minutes 
  • Washington Dulles International Airport (IAD) - approximately 45 minutes
  • Baltimore/Washington International Airport (BWI) - approximately 75 minutes


The Liaison Capitol Hill is a 7-10 minute walk or a 5 minute drive from Washington DC - Union Station (WAS) AMTRAK and Union Station Metrorail (Red Line).

Due to the Washington Metropolitan Transportation Authority’s (WMATA) SafeTrack Metrorail repairs, please review metro schedules in advance and allow extra time for travel. Metro Trip Planner


Self parking is available at The Liaison Capitol Hill.  Parking fees range from $14 - $21 depending on arrival and departure times.


Questions? Contact:

Tanya Bailey
Membership & Meetings Associate

Alliance for Aging Research

The Alliance for Aging Research is the leading nonprofit organization dedicated to accelerating the pace of scientific discoveries and their application to vastly improve the universal human experience of aging and health. For 30 years, the Alliance has been advancing innovation that supports the healthcare needs of older Americans and their family caregivers, through targeted federal advocacy and educational initiatives. To learn more visit Tweet @agingresearch.

Caregiver Action Network

Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge. To learn more visit Tweet @caregiveraction.

Friends of Cancer Research

Friends of Cancer Research drives collaboration among partners from every healthcare sector to power advances in science, policy and regulation that speed life-saving treatments to patients. During the past 20 years, Friends of Cancer Research (Friends) has been instrumental in the creation and implementation of policies ensuring patients receive the best treatments in the fastest and safest way possible. We’ve been successful due to our ability to convene the right people at the right time and put forth revolutionary, yet realistic ideas. Now, in the 20th year, Friends is energized more than ever to continue this critical work with trusted partners, creating innovative solutions to overcome barriers standing in the way of conquering cancer. To learn more visit Tweet @CancerResrch.

Global Liver Institute

Global Liver Institute is the catalyst and convener for innovation to defeat liver disease. Founded in 2014 by liver transplant recipient, Donna R. Cryer, JD and internationally-renowned hepatologist, Hillel Tobias, MD, PhD, the Global Liver Institute is taking a new approach to advocacy to tackle the complex problem of liver disease. GLI serves as an organizational hub, bringing together both traditional advocacy groups as well as stakeholders previously not invested in liver disease, to form high-level collaborative partnerships. GLI then applies lean start-up and design thinking principles to rapidly identify, iterate and develop solutions that can be widely disseminated to reach patients, clinicians or other stakeholder groups. To learn more visit Tweet @globalliver.

Healthcare Leadership Council

The Healthcare Leadership Council (HLC), a coalition of chief executives from all disciplines within American healthcare, is the exclusive forum for the nation’s healthcare leaders to jointly develop policies, plans, and programs to achieve their vision of a 21st century system that makes affordable, high-quality care accessible to all Americans. Members of HLC – hospitals, health plans, pharmaceutical companies, medical device manufacturers, biotech firms, health product distributors, pharmacies and academic health centers – envision a quality-driven system that fosters innovation. HLC members advocate measures to increase the cost-effectiveness of American healthcare by emphasizing wellness and prevention, care coordination, and the use of evidence-based medicine, while utilizing consumer choice and competition to elevate value. To learn more visit Tweet @healthinfocus.

National Black Nurses Association

The National Black Nurses Association (NBNA) was organized in 1971 under the leadership of Dr. Lauranne Sams, former Dean and Professor of Nursing, School of Nursing, Tuskegee University, Tuskegee, Alabama. NBNA is a non-profit organization incorporated on September 2, 1972 in the state of Ohio. NBNA represents 150,000 African American registered nurses, licensed vocational/practical nurses, nursing students and retired nurses from the USA, Eastern Caribbean, Canada and Africa, with 100 chartered chapters, in 35 states. The National Black Nurses Association’s mission is “to represent and provide a forum for Black nurses to advocate and implement strategies to ensure access to the highest quality of healthcare for persons of color”. To learn more visit Tweet @NbnaInc.

National Health Council

Founded in 1920, the National Health Council (NHC) is the only organization that brings together all segments of the health community to provide a united voice for the more than 133 million people with chronic diseases and disabilities and their family caregivers. Made up of more than 100 national health-related organizations and businesses, the NHC's core membership includes the nation’s leading patient advocacy organizations, which control its governance and policy-making process. Other members include professional and membership associations, nonprofit organizations with an interest in health, and representatives from the pharmaceutical, generic drug, health insurance, medical device, and biotechnology industries. To learn more visit Tweet @nhcouncil.

National Patient Advocate Foundation

The National Patient Advocate Foundation represents the patient's voice nationwide, particularly those struggling with a chronic, debilitating or life-threatening illness. NPAF supports sensible reforms that will expand access to health care for patients and protect them from the often unjust and discriminatory effects of illness. An advocacy affiliate of the Patient Advocate Foundation, NPAF translates the individual experiences of patients who have been denied access to affordable, quality health care into national and state policy initiatives. To learn more visit Tweet @NPAF-tweets.

National Psoriasis Foundation

National Psoriasis Foundation (NPF) is the world's largest nonprofit serving those with psoriasis and psoriatic arthritis. Our priority is to provide the information and services people need to take control of their condition, while increasing research to find a cure. In addition to serving more than 2.1 million people annually through our health education and advocacy initiatives, NPF has funded more than $13 million in psoriatic disease research grants and fellowships. Learn more about NPF at Tweet @NPF.

Personalized Medicine Coalition

The Personalized Medicine Coalition (PMC), representing innovators, scientists, patients, providers and payers, promotes the understanding and adoption of personalized medicine concepts, services and products to benefit patients and the health system. To learn more visit Tweet @permedcoalition.